A feasibility study of urgent implementation of cystic fibrosis multidisciplinary telemedicine clinic in the face of COVID-19 pandemic: single-center experience

M Compton, M Soper, B Reilly, L Gettle… - Telemedicine and e …, 2020 - liebertpub.com
Introduction: The coronavirus 2019 (COVID-19) pandemic has become a major world health
problem. All US states have advised their cystic fibrosis (CF) populations to socially isolate …

[HTML][HTML] Remote monitoring in telehealth care delivery across the US cystic fibrosis care network

T Ong, AD Van Citters, C Dowd, J Fullmer, R List… - Journal of Cystic …, 2021 - Elsevier
Background Cystic fibrosis (CF) programs and people with CF (PwCF) employed various
monitoring methods for virtual care during the COVID-19 pandemic. This paper …

Preserving multidisciplinary care model and patient safety during reopening of ambulatory cystic fibrosis clinic for nonurgent care: a hybrid telehealth model

R List, M Compton, M Soper, H Bruschwein… - Telemedicine and e …, 2021 - liebertpub.com
Introduction: The University of Virginia's (UVA's) adult cystic fibrosis (CF) program
implemented a rapid and successful transition to telemedicine care mid-March of 2020 in …

Home spirometry utilisation in telemedicine clinic for cystic fibrosis care during COVID-19 pandemic: a quality improvement process

M Compton, R List, E Starheim… - BMJ Open …, 2021 - bmjopenquality.bmj.com
Introduction The Cystic Fibrosis (CF) Foundation chronic care guidelines recommend
monitoring spirometry during quarterly multidisciplinary visits to identify early lung function …

Social determinants of health screening and intervention: a cystic fibrosis quality improvement process

D Jennings, R List, H Bruschwein… - Pediatric …, 2022 - Wiley Online Library
Introduction Lower socioeconomic status is associated with significantly poorer outcomes in
weight, lung function, and pulmonary exacerbation rates in people with cystic fibrosis …

[HTML][HTML] The impact of CFTR modulator triple therapy on type 2 inflammatory response in patients with cystic fibrosis

AM Mehta, I Lee, G Li, MK Jones, L Hanson… - Allergy, Asthma & …, 2023 - Springer
Background Treatment of cystic fibrosis (CF) has been revolutionized by the use of cystic
fibrosis transmembrane conductance regulator (CFTR) protein modulators such as …

Real-world outcomes in cystic fibrosis telemedicine clinical care in a time of a global pandemic

LAL Somerville, RP List, MH Compton, HM Bruschwein… - Chest, 2022 - Elsevier
Background During the COVID-19 pandemic, the University of Virginia adult cystic fibrosis
(CF) center transitioned from in-person clinical encounters to a model that included …

Mental health screening of patients with cystic fibrosis through telehealth during COVID-19: Evaluation of feasibility and process adoption.

HM Bruschwein, M Soper, D Jennings… - Families, Systems, & …, 2022 - psycnet.apa.org
Introduction: Persons with cystic fibrosis (CF) have higher rates of depression and anxiety
compared to the general population. The Cystic Fibrosis Foundation guidelines recommend …

Improved recognition of lung function decline as signal of cystic fibrosis pulmonary exacerbation: a Cystic Fibrosis Learning Network Innovation Laboratory quality …

R List, G Solomon, S Bichl, BJ Horton… - BMJ Open …, 2023 - bmjopenquality.bmj.com
Introduction Cystic fibrosis (CF) is a systemic autosomal recessive condition characterised
by progressive lung disease. CF pulmonary exacerbations (PEx) are episodes of worsening …

Analysis of iron status after initiation of elexacaftor/tezacaftor/ivacaftor in people with cystic fibrosis

A James, G Li, R List, K Lonabaugh… - Pediatric …, 2024 - Wiley Online Library
Background Iron deficiency is highly prevalent in people with cystic fibrosis (PwCF). While
elexacaftor/tezacaftor/ivacaftor (ETI) has shown remarkable improvements in respiratory …