Establishing a Cystic Fibrosis Learning Network: Interventions to promote collaboration and data‐driven improvement at scale

T Ong, D Albon, RS Amin, J Bailey… - Learning Health …, 2023 - Wiley Online Library
Introduction A learning health network is a type of learning health system in which
stakeholders use network organization to improve health and health care. Building on …

Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic: a success QI story for interdisciplinary care and agenda setting

D Albon, L Thomas, L Hoberg, S Stamper… - BMJ Open …, 2022 - bmjopenquality.bmj.com
Introduction The Cystic Fibrosis Foundation chronic care guidelines recommend monitoring
clinical status of a patient with cystic fibrosis (CF) through quarterly interdisciplinary visits. At …

Reciprocal links between physical health and coping among adolescents with cystic fibrosis

CM D'Angelo, S Mrug, D Grossoehme… - Journal of Pediatric …, 2021 - academic.oup.com
Objective Adolescents with cystic fibrosis (CF) often face a unique set of difficulties and
challenges as they transition to adulthood and autonomy while also managing a progressive …