End of life care for adult cystic fibrosis patients: Facilitating a good enough death☆
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Keywords
Palliative care
Psychosocial
Honest communications
Early discussions
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Adult Cystic Fibrosis Centre, Papworth NHS Trust. Work should be attributed to Adult Cystic Fibrosis Centre, Papworth NHS Trust. Source of support: (Cystic Fibrosis Trust and Papworth Hospital Trust Funds). The funding sources had no involvement in the study design, collection, analysis, and interpretation of the data. All authors declare that there are no competing interests. Ethics approval for the study was obtained from Huntingdon Local Research Ethics Committee. Abstracted (490) At Seventeenth Annual North American Cystic Fibrosis Conference, October 2003, Anaheim. “Palliative Care in Cystic Fibrosis: A Model of Good Practice” Pediatric Pulmonology Supplement 25, 2003.
Copyright © 2005 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.