PROM and PREM structures
Validated scoring tool | No of questions | Min score | Max score | Threshold for a suboptimal score | Interpretation ↑ score | |
Social support | SIMSS | 1 | 0 | 3 | Score≤1 | ↑ Social support |
PROM | ||||||
Health-related quality of life | PROMIS-10 | 10 | 10 | 50 | Total score ≤19 and/or pain score ≥3 | ↑ Quality of life |
Mental health | ||||||
Screening | PHQ-2 | 2 | 0 | 6 | ↑ Depression risk | |
Follow-up | EPDS | 10 | 0 | 30 | Total score ≥10 and/or question 10 ≥2 | ↑ Depression risk |
Urinary incontinence (UI) | ||||||
Screening | N/A | 1 | 0 | 1 | ||
Follow-up | ICIQ-SF | 3 | 0 | 21 | Total score ≥6 | ↑ Severity UI |
Anal incontinence (AI) | ||||||
Screening | N/A | 1 | 0 | 1 | ||
Follow-up | Wexner | 5 | 0 | 20 | Question 1, 2, 3 or 5 ≥1 | ↑ Severity AI |
Pain with intercourse | PROMIS_ SFFAC102 | 1 | 0 | 5 | Score ≥2 | ↑ Impact of pain |
Role confidence | N/A | 1 | 1 | 5 | Score ≤2 | ↑ Confidence |
PREM | ||||||
Birth experience | BSS-R | 10 | 0 | 40 | Total score <25 | ↑ Better experience |
Satisfaction with care | N/A | 1 | 0 | 4 | Score ≤1 | ↑ Satisfied |
HCR and shared decision making | N/A | 8 | 0 | 16 | One or more questions answered with 0 | ↑ Better experience |
Continuity of care | N/A | 3 | 0 | 12 | One or more questions answered with 1 | ↑ Better experience |
Pain relief | N/A | 2 | 0 | 6 | Question 1=0 and/or question 2 ≤1 | ↑ Better experience |
Partner involvement | N/A | 2 | 0 | 10 | One or more questions answered with 1 | ↑ Better experience |
Grey shade are dependent questions: EPDS is asked if mental health screening with PHQ-2 ≥3, ICIQ-SF if urinary incontinence screening question=1, Wexner if anal incontinence screening question=1.
Continuity of care, pain relief, partner involvement and four questions in healthcare responsiveness and shared decision making were Dutch additions to the ICHOM standard set.
BSS-R, Birth Satisfcation Scale-Revised; EPDS, Edinburgh Postnatal Depression Scale; HCR, healthcare responsiveness; ICHOM, International Consortium for Health Outcomes Measurement; ICIQ-SF, International Consultation on Incontinence Questionnaire-Short Form; N/A, not available; PHQ-2, Patient Health Questionnaire; PREM, patient-reported experience measure; PROM, patient-reported outcome measure; PROMIS, Patient-Reported Outcomes Measurement Information System; SFFAC102, Sexual Function and Satisfaction; SIMMS, Single Item Measure of Social Supports.