| Disease-specific content |
naming the diagnosis typical symptoms typical prognosis therapeutic options effects of medications research being conducted
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| Individualised content |
what to do to improve/maintain quality of life what not to do (things detrimental to their quality of life) planning for trips away from home acquiring supplemental oxygen and insurance coverage success stories of patients who have surpassed prognostic timelines
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how to manage medications managing supplemental oxygen (how to get it, how it should be used, how to encourage appropriate use) when to be concerned about patient symptoms, disease progression managing patients’ and their own expectations preventing exposure to infection how to decrease stress and tension between themselves and patient
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