PT  - JOURNAL ARTICLE
AU  - Marr, Alexa
AU  - Tsampalieros, Anne
AU  - Courtney, Jennilea
AU  - Seid Hamid, Jemila
AU  - St-Denis-Murphy, Josee
AU  - Stevens, Liz
AU  - Ahmet, Alexandra
AU  - Goldbloom, Ellen B
TI  - Patient and family perspectives of a Pre-Transition Visit in a paediatric tertiary care diabetes clinic
AID  - 10.1136/bmjoq-2021-001563
DP  - 2022 Jan 01
TA  - BMJ Open Quality
PG  - e001563
VI  - 11
IP  - 1
4099  - http://bmjopenquality.bmj.com/content/11/1/e001563.short
4100  - http://bmjopenquality.bmj.com/content/11/1/e001563.full
SO  - BMJ Open Qual2022 Jan 01; 11
AB  - Introduction The need to better prepare youth with type 1 diabetes for the transition from paediatric to adult care is evident. As part of a regional quality improvement initiative, a novel Pre-Transition (Pre-T) Visit was developed and piloted at a paediatric tertiary care centre in January 2018 for patients aged 15–18 years to capture the status of their self-management skills, introduce transition tools and identify self-care goals and knowledge gaps to be addressed prior to transition.Purpose To evaluate patient and family satisfaction, visit relevance and patient engagement with a novel Pre-T Visit.Methods From May 2019 to March 2020 a survey was offered to all youth who attended a Pre-T Visit and their parent(s)/caregiver(s). Patient and family satisfaction with, relevance of and engagement with the Pre-T Visit were evaluated using a 5-point Likert scale. Multivariable regression was used to assess patient factors associated with patient level satisfaction.Results Of the 63 youth who participated in a Pre-T Visit, 60 completed the survey. Mean age (SD) of participants was 16.7 (0.8) years; 47% were female. Mean (SD) haemoglobin A1C (A1C) was 8.2% (1.8). Patients reported high levels of satisfaction (95% quite or extremely satisfied) that were consistent across age, A1C, gender and disease duration. Visit relevance and engagement were also rated highly by youth. Parent participants (n=27) also reported high levels of satisfaction (89% quite or extremely satisfied) and relevance.Conclusions Pre-T Visits were rated highly by patients and their parents. Their impact on glycaemic control and health outcomes following transition requires further study.Data are available upon reasonable request. All data relevant to the study are included in the article or uploaded as supplementary information. All data relevant to the study are included in the manuscript or uploaded as supplementary information (questionnaires). Additional data are available upon request.