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Photovoice as a promising public engagement approach: capturing and communicating ethnic minority people’s lived experiences of severe mental illness and its treatment
  1. Kristoffer Halvorsrud1,
  2. James Rhodes2,
  3. George Webster1,
  4. Joy Francis3,
  5. Maria Haarmans2,
  6. Natalia Dawkins1,
  7. James Nazroo2,
  8. Kamaldeep Bhui1
  9. Mental Health Organisations
    1. 1Centre for Psychiatry, Queen Mary University of London, London, UK
    2. 2Sociology, School of Social Sciences, Humanities, University of Manchester, Manchester, UK
    3. 3Words of Colour Productions, London, UK
    1. Correspondence to Dr Kristoffer Halvorsrud; k.halvorsrud{at}qmul.ac.uk

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    Problem

    Mental health related stigma, within widespread discrimination and exclusion,1 inhibits many from seeking help.2–4 Moreover, conventional therapeutic methods relying on the spoken word only may not elucidate the full range and nuances of lived experiences.5 6 The use of photography alongside narratives (photovoice) can provide a powerful means for ethnic minority service users and their carers to communicate these experiences, with photographic displays to a broader audience contributing towards destigmatising mental illness.

    Method

    Photovoice can facilitate an authentic and meaningful method of co-creating/co-producing knowledge in healthcare.2–9 Our workshops were hosted at community centres in London and Manchester (England). The project was explained verbally and through the distribution of information leaflets, while any queries were addressed. We then sought informed consent, distributed disposable cameras and notebooks with prepaid envelops for their return, before asking participants to take photos (post-workshop) of their realities of severe mental illness or its treatment. Participants were reassured that there were no ‘right’ or ‘wrong’ approaches and no professional photographic training was provided to ensure that photos represented their views. Photos from returned cameras were then developed for subsequent workshops (approximately 2–3 weeks later), where participants selected three to five photos for individual reflection guided by photo-trigger questions. Any individuals’ faces shown in images, including participants’, were blurred unless they signed a separate consent form. Based on their narratives, photo captions were produced with participants individually and closed exhibitions facilitated at the community centres to protect participants’ identity and to give the option to amend their captions before the public exhibitions (figure 1).

    Figure 1

    Overview of photovoice project with each respective partner in London and Manchester.

    Results

    Seven workshops were hosted over 6 months, with three subsequent exhibitions at community centres and two public exhibitions split between London and Manchester. Twenty-one people participated in the project (table …

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