Pretransplant |
‘I was not told this was a possibility before my transplant’ |
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Post-transplant discharge |
‘We can’t tell who is who’ ‘Too much information that does not register at that time’ ‘Dietician did not talk to me about diabetic diet’ |
Have the clinical teams work together to give one set of instructions (transplant, endocrine, nutrition) Colour code the discharge instructions by clinical service Provide a single list of emergency contact for each clinical service (transplant, endocrine) and telephone number Create a brochure that includes a picture, name, clinical service and role of all providers: Physician name Attending physician Endocrinology (diabetes)
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‘We overshot ourselves’ ‘No one took this pen and told us how to uncap it’ ‘I created my own list [meds] since they were all not on it…’ ‘I was on syringes and had to switch to pens but was not trained on pens’ |
Provide patients with a chart with a picture of each medication that they will be taking, as part of the discharge instructions. Provide accurate training materials for each type of medication type and each delivery system
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‘I ran out of the supplies right away’ |
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‘I missed a dose and was so worried about it’ |
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After discharge |
‘If they can schedule the first appointment for us… we haven’t even met the doctor…’ |
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‘It was helpful to have one point contact throughout our care’ |
Patient portal (MyChart) is a very effective tool for communicating with physicians and providers Set patients up as early as possible with a MyChart account Help establish and refer patients to a ‘Patient Group’ that can provide peer support for new-onset DM Provide more support (eg, training, education materials) to help caregivers
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